Over 21,000 men to date have been added to the SA Prostate Cancer Registry and it continues to grow each year. Patients are recruited from across South Australia including men diagnosed at both public and private health care providers. The registry is supported by a collaboration of specialists and researchers from across the state.
The aim of the SA Prostate Cancer Registry is to capture information on diagnosis and treatment for men with prostate cancer in order to monitor outcomes and inform research toward improving quality of care.
The South Australian Prostate Cancer Clinical Outcomes Collaborative (SA PCCOC) is in partnership and contributes to the Prostate Cancer Outcomes Registry Australia and New Zealand, a national initiative funded by the Movember Foundation together with:
- Victorian Prostate Cancer Clinical Registry
- NSW Prostate Clinical Cancer Registry
- Prostate Cancer Outcomes Registry – Queensland
- Prostate Cancer Outcomes Registry Tasmania
- Australian Capital Territory
- Northern Territory
- Western Australia
- New Zealand
with the aim to capture diagnosis, treatment, quality of life and mortality data for men diagnosed with prostate cancer from the 1st of January 2015 onwards at all participating sites.
If you are a patient with prostate cancer, a medical professional or a researcher and have been approached to participate in the SA Registry, we encourage you to get involved. Your contribution will help towards better understanding and managing prostate cancer disease and ensure men are receiving the best possible healthcare service both within SA and across Australia.
Data we collect
- Pathological outcomes after surgery;
- Biochemical recurrence after surgery or radiotherapy;
- Prostate cancer-specific death;
- All-cause mortality;
- Quality of life after treatment.
- Transrectal Ultrasonography (TRUS) diagnostic biopsy
- Transperineal diagnostic biopsy
- Transurethral Resection of the Prostate (TURP)
- Hormones: (Androgen Deprivation (Chemical/Surgical)
- Radical Prostatectomy (Open retropubic and Robot assisted laparoscopic)
- Active Surveillance/Watchful Waiting