Collaboration with SA-PCCOC
To reach our goals, we seek the support of all diagnosing clinicians in South Australia.
What benefit will the registry provide you?
Contributing to the SA-PCCOC will provide you the option of requesting reports relating to the outcomes of your patients. This gives a valuable opportunity to benchmark the outcomes of your patients with those of your peers in the state. More broadly, the database provides a unique resource to support training and research in South Australia.
- Volume – number of patients treated at your institution per year ( by treatment).
- Margins – Positive margin rate after Radical Prostatectomy.
- PSA – PSA level recorded at diagnosis.
- Clinical Stage – Documentation of clinical T stage in the medical record.
- Observation – Active surveillance or watchful waiting with low-risk disease.
- Active Treatment – Evidence that patients in high-risk disease groups received active treatment.
- Timing – Time from biopsy-confirmed diagnosis to first treatment.
- Survival – 5-, 10-,and 15- year overall survival after diagnosis.
- Recurrence – Clinical and/or biochemical disease-free survival after primary treatment by RT or RP.
- PROMS Function – Patient assessment of urinary, sexual, and bowel function at 12 months post treatment.
- PROMS Bother – Patient assessment of urinary, sexual, and bowel bother at 12 months post treatment.
- Death – Rate of in-hospital death from surgical complications.
What do we need from you?
- Support in distributing information packs to newly diagnosed patients. We will seek from you a list of patients who have been supplied with a pack on a monthly basis. These can be emailed or faxed to our Data Co-ordinator Tina Kopsaftis.
- A copy of your indemnity insurance certificate.
- The name of the pathology company you usually refer patients to for biopsy and PSA tests.
- Access to medical case notes in a way convenient to you.
Assuring protection of your data
Data within SA-PCCOC will be held in a secure database housed in the SA-Health environment. Data within the SA-PCCOC is governed by a Steering Committee and identifiable data will not be released to any third party. Your identity and the identity of your patients will be kept confidential and in a secure environment. The study has received ethics approval from the Southern Adelaide Clinical Human Research Ethics Committee.
Reference: Nag N, et al. Development of Indicators to Assess Quality of Care for Prostate Cancer. Eur Urol Focus (2016), http://dx.doi.org/10.1016/j.euf.2016.01.016