Over 12,000 men to date has been added to the SA Prostate Cancer Registry and continues to grow each year.  Patients are recruited from across South Australia including men diagnosed at both public and private health care providers. The study is supported by a collaboration of specialists and researchers from across the state.

 

The South Australian Prostate Cancer Clinical Outcomes Collaborative (SA PCCOC) is in partnership and contributes to the Prostate Cancer Outcomes Registry Australia and New Zealand, a national initiative funded by the Movember Foundation together with:

 

 

with the aim to capture diagnosis, treatment, quality of life and mortality data for men diagnosed with prostate cancer from the 1st of January 2015 onwards at all participating sites.  

 

If you are a patient with prostate cancer, a medical professional or a researcher and have been approached to participate in the SA Registry, we encourage you to get involved. Your contribution will help towards better understanding and managing prostate cancer disease and ensure men are receiving the best possible healthcare service both within SA and across Australia.

 

Data we collect

 

  • Pathological outcomes after surgery;
  • Biochemical recurrence after surgery or radiotherapy;
  • Prostate cancer-specific death;
  • All-cause mortality;           
  • Quality of life after treatment.

 

Clinical measures:

     

  • Transrectal Ultrasonography (TRUS) diagnostic biopsy
  • Transperineal diagnostic biopsy
  • Transurethral Resection of the Prostate (TURP)

 
Treatment types:
                                                                                                     

  •  Hormones: (Androgen Deprivation (Chemical/Surgical)
  •  Surgical pathology (Robotic Laparoscopic Radical Prostatectomy)
  •  Active Surveillance/Watchful Waiting
  •  Radiotherapy
 

Data Access Requests

The SA Prostate Cancer Outcomes Database recognises the benefits from and encourages the availability of our data for research. Please contact us to discuss requests for data.

 

Frequently Asked Questions

Publication Statistics

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The number of citations from our publications

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Publications have used data from the SA-PCCOC Registry

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The number of current research projects in progress

 

Reporting and Publications

SA-PCCOC has published in all areas of prostate cancer interest including: urology, medical oncology, radiation oncology, epidemiology and physiotherapy.

 

Data Linkage

SA-PCCOC invests in tools through electronic collection of PSA tests and cancer notifications to help achieve recruitment goals.

Sponsors and Partnerships

 

SA-PCCOC contributes to the Bi-National Prostate Cancer Registry (PCOR-ANZ)

All donations are gratefully accepted through the Hospital Research Foundation.