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General information on Prostate Cancer
Accessing peer support
Relationships Counselling
Clinical Trials in Australia
Alternative and complementary therapies
Nomograms: Software for estimating risk
Other helpful websites
Cancer Books
Mr PHIP Series: Glossary
If you need more information about prostate cancer, your options include cancer organisations with informative websites, helplines (telephone or online), peer support groups and books. The following is a selection.
General information on Prostate Cancer
Lions Australian Prostate Cancer Website
This website established by the Australian Prostate Cancer Collaboration gives stage-by-stage information on prostate cancer, support groups, news, and an email helpline.
www.prostatehealth.org.au
The Cancer Council Australia's Cancer Helpline
The Cancer Council Helpline is a free (cost of a local call), confidential telephone information and support service run by Cancer Councils in each state and territory.
Phone 13 11 20.
Prostate Cancer Foundation of Australia
The PCFA is a peak body raising funds, raising awareness and supporting men with prostate cancer. It has a toll-free number and informative website.
Phone 1800 22 00 99.
www.prostate.org.au
The Urological Society of Australasia
This peak body representing Urologists has an informative website which includes how to find a Urologist in your area (Australia and New Zealand).
www.urosoc.org.au
Andrology Australia
Andrology Australia, a centre of excellence in male reproductive health disorders, provides information on prostate disease, male infertility, testicular cancer and many other topics.
www.andrologyaustralia.org
National Comprehensive Cancer Network
This US network of 20 leading cancer centres has clinical practice guidelines for most cancers, including 'Prostate Cancer Treatment Guidelines for Patients' updated in 2005.
www.nccn.org
Continence Foundation of Australia Helpline
This professional body provides a free national helpline on managing bowel or bladder problems.
Phone 1800 33 00 66.
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Accessing Peer Support
You can find a peer support group in your area in a number of ways:
- visit the Lions Australian Prostate Cancer website and search by your state: www.prostatehealth.org.au
- visit the PCFA website which has a listing: www.prostate.org.au
- call the Prostate Cancer Foundation Infoline on 1800 22 00 99
- call the Cancer Council Helpline on 13 11 20.
You can also access others' experiences of prostate cancer by joining an email mailing list eg.
www.prostatepointers.org/mlist/mlist.html
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Relationships Counselling
Mensline Australia
This is a national 7 day a week service for men with family and relationship difficulties. Phone: 1300 78 99 78.
www.menslineaus.org.au
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Clinical Trials in Australia
The Australian Clinical Trials Registry
The Registry website has clinical trials available nationally as well as the type of patients they are seeking.
www.actr.org.au
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Alternative and complementary therapies
National Prescribing Service Medicines Line
This Australian service provides consumers with independent information on prescription medicines, over-the-counter medicines, herbal and natural therapies. Phone: 1300 888 763.
National Centre for Alternative and Complementary Medicine
You can search for trials of complementary treatments on PubMed from this website of the US National Institutes of Health.
http://nccam.nih.gov
American Cancer Society
The ACS website gives information on different types of complementary medicine as well as evidence supporting effectiveness.
www.cancer.org/docroot/ETO/ETO_5.asp
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Nomograms: Software for estimating risk
This is sophisticated software for calculating the probability of different outcomes, given clinical information such as your stage, grade and PSA. It is not easy to understand without some medical knowledge.
Memorial Sloan Kettering Cancer Centre
A leading US cancer centre providing a number of nomograms for calculating prostate cancer risk with an explanation of how to use them.
www.mskcc.org/mskcc/html/10088.cfm
Prostate Cancer Research Institute
This non-profit US organisation, founded in 1996 by medical oncologists, provides a range of educational tools including nomograms and tools to calculate PSA doubling time.
www.prostate-cancer.org/tools/software/pctools2.html
www.prostate-cancer.org/tools/software/software.html
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Other helpful websites
You are not alone!
A very supportive website with strong patient input. It has stories from family members as well as men themselves.
www.yananow.net
Listing of websites
A list of annotated links to Australian and international prostate cancer websites is given on the Lions Australian Prostate Cancer website.
www.prostatehealth.org.au/links
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Cancer Books (alphabetical)
A Primer on Prostate Cancer: the empowered patient's Guide.
Dr Stephen Strum and Donna Pogliano. The Life Extension Foundation, Florida 2005. Written by a US Urologist, this book is for those seeking to understand the more technical aspects of their care.
Coping with Prostate Cancer
This useful booklet from the Queensland Cancer Fund gives issues you may face after a diagnosis and strategies for dealing with them. Available online from the QCF website, or call 13 11 20.
www.qldcancer.com.au/Cancer_Info_and_Services/PCS/CancerResources.html
Intimacy with Impotence. The Couple's Guide to Better Sex After Prostate Disease.
Ralph Alterowitz and Barbara Alterowitz. Da Capo Press, 2004. Information on relationships, commercial therapies and advice on love-making after prostate disease.
Life's in the Pink. How to maintain a quality of life by a prostate cancer survivor.
Barry L. Oakley. A sequel to Barry's popular first booklet. Available from PSA Prostate Cancer Support Group, 39 Greenfield Rd, Seaview Downs, SA 5049. Phone 08 8298 8040.
Localised Prostate Cancer: a guide for men and their families.
This free booklet, produced by the APCC and the Australian Cancer Network helps men making a decision about treatment for cancer that has not spread beyond the prostate. It explains the tests and the treatments. Cancer Council Helpline: 13 11 20.
Prostate Cancer and Sex
This useful booklet from the Queensland Cancer Fund explains sexual function and how it is affected by prostate cancer treatment. Available online from the QCF website, or call 13 11 20.
www.qldcancer.com.au/Cancer_Info_and_Services/PCS/CancerResources.html
The Prostate Book: the complete guide to overcoming prostate cancer, prostatitis and BPH.
Dr Peter Scardino and Judith Kelman. Penguin Group, New York, 2005. A book by one of the best-known US urologists.
There's Some Good Years Left Yet - the experience of a prostate cancer survivor.
Barry L. Oakley. Prostate cancer survivor, Barry Oakley, talks about his experiences and tips for coping with prostate cancer. Available from Prostate Health Improvement Program, Repatriation Hospital, Daw Park, SA 5041. Phone: 08 8275 1169.
Your Guide to Prostate Cancer: the disease, treatment options and outcomes.
Dr Prem Rashid. Uronorth Group, Port Macquarie, 2006. This Australian book, written by a Urologist covers prostate cancer comprehensively and other prostate problems.
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Mr PHIP Series: Glossary
You can access the Glossary here.
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This information sheet is not intended to take the place of medical advice. Information on prostate disease is constantly being updated. We have made every effort to ensure that information was current at the time of production, however your GP or specialist may provide you with new or different information which is more appropriate to your needs.
© Repatriation General Hospital, July 2006
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